Tag Archives: NHS

Isolation & cabin fever

I have a very boring life.

Seriously, since Covid hit the world my life has been boring and extremely isolating!

I have a weak chest, I have asthma, but I have also survived pneumonia four times over the past eight years the second from last bout nearly killed me!

Therefore this has meant I am one of the few thousand vulnerable who is so scared of going out that I haven’t left the house since July 28th and that was to have a tooth pulled!

I didn’t start going to the library like I said I would at the end of November.

Though I caught Covid19 on Thursday the day before Good Friday 2022, I did pretty well – I wasn’t hospitalised at least and it was around 9 weeks after my first ever Covid vaccine. 

I am sharing this because there are rumours going around that I no longer live with Paul as nobody has seen me in months!  Believe me I am still here, I am just hiding from all the germs!

Because I can’t find a mask that is safe enough to wear whilst having asthma, my asthma is still pretty bad and I don’t breathe very well through my nose because of sinus issues – so it’s really not an option to wear a mask.

I was starting to think about going to a gym and going back to the library weekly starting from January, but now I hear there is an even deadlier new strain coming out of China again and China is opening their international doors again!

So I thought, aw fuck it, why now?  Just as I was about to risk going out at least once a week and without a mask! 

So I am in limbo again and this is part of the reason why my depression hit me hard the other day – I just want a normal life!

I don’t trust the NHS to save my life if I were to get the new strain of Covid – especially as the NHS can’t seem to get me my second dose of Astra Zeneca and they agree with my health issues the other two are a no-go option!  Yes, for nearly ten months I have been waiting for them to contact me about Astra Zeneca for my second shot, I am not fully protected!

The NHS is also struggling to get me a much needed appointed for something else – an overdue appointment, I won’t mention what.  But should it take a year to try and get a simple appointment and still there are none available?  We try every single day in hope of a cancellation, but to no avail and I am in pain whilst waiting!

So we decided to go to the pharmacy and buy the kit to do it ourselves, but when they heard I had a symptom with it, they said, no you really need the hospital to do it… WTF? 

The pharmacist thinks it’s urgent, the NHS doesn’t!

I’m glad I am not any sicker than I was the last time the doctor saw me, because based on what the doctor feared, I could have been dead by now – but that’s really not important apparently!

So because I haven’t worsened in the three months, six months and nine months the doctor contacted me by phone, they are presuming it’s not cancerous.  That’s all I am saying on the matter, yeah so for cancer they are still dragging their heels with appointments.  But that’s not all, I have relatives and friends of relatives tell me that cancer patients are more or less considered the walking dead now as the NHS is bankrupted and cancer diagnoses have a two year waiting list and guess what?  Most people are dead by the time they get checked out!

But right now I don’t care about all of that – I care about getting out and about again!  I can’t go into my own garden thanks to the twat that lives next door and his vicious dog!  I haven’t felt the breeze on my face or wind in my hair or the rays of the sun for months!

Months!

I feel like an indoor caged animal, left in a cold room all alone and forgotten! 

I can do lengthy isolation, my childhood trained me for it, but I have never ever in my entire life gone more than three weeks without leaving the house, before Covid came about and during those times we were always guaranteed at least three to five different visitors per week on average! 

Paul and I are hardly speaking these days without arguing, we get approximately thirty minutes a day to talk now – Henry is too absorbed in whatever he is absorbed in at the time that I generally get less than fifteen minutes with him, other than the house rabbit Ray – I have no one I can verbally talk to anymore and guess what?

I am embarrassed to say, its causing some of my long forgotten speech problems to come back – I stammer occasionally again and my lisp can be caught every now and again, problems I thought I got rid of in college!

Why?

Because I am not talking enough to anyone!

So as crazy as it sounds, I told Paul – you will hear me talking to myself in the bedroom because I need to keep practising my speech, as problems are reoccurring.  So I record myself again, yabbering on to myself in the bedroom like a crazy woman, to try and prevent the speech problems from coming back!

I am talking about everything, doing running commentaries on anything I can see and hilariously I forget to shut up when I am in the company of both Paul and Henry occasionally.  They think I’ve lost the plot and I know they’re right!

So with that being said…

I love you all… I am going round the twist… and I hope I make it to the other side in one piece!

At least I know I can last five months before cabin fever starts setting in!

Thanks for reading!

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Filed under About Me

Product recall

I have lost my hearing almost entirely again due to not being able to take my usual medication daily, due to a product recall.

This means without a hearing aid constantly in my ear, I can’t hear even the loudest of sudden noises and because I can’t take my medication the infection it has caused means that it’s not wise to wear a hearing aid at all now unless desperate!

Paul had to try and buy the medicine online as the NHS can’t get access to it and so he found a warehouse online which still stores some safe medicine for me to use and we have to wait a couple of more days to get it, but they are only allowing one per person and it is only a one week supply!

Without this medication the eczema in my inner ear gets really bad and causes a thrush like infection of the inner ear, which often makes me go deaf and in pain.  Without this medicine controlling it I could risk another cholesteatoma and that would mean another mastoid surgery but on the left ear instead!

This medication is a lazy and cheap way for the NHS to manage my condition, before the NHS became bankrupted in this area; I was often called in once every six weeks for an aural cleaning and a precautionary spray and never had infections for several years.  But now, I get an infection in just five days of not using the medication I need literally daily, this is not ideal as it means I am using antibiotics every day and could build up a resistance eventually and I am severely allergic to their back up plan!

This is part of the reason why I have been quiet recently, the infection is making me sleepy and the pain is making it hard for me to concentrate and sleep comfortably.

My face swells too and makes me look round faced when my ears are full like that – making me even uglier than before!

I hate silence, it drives me mad!  I could never cope being deaf long-term, I get headaches, I don’t like it, it’s not peaceful – it’s frustrating and makes my depression extremely bad!

Just a heads up for people who want to know!

Thanks for reading!

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Filed under About Me

Remission, weight loss and dreams

It may have been a long remission between Easter and last week, because for the past few days I have been sleeping a lot and finding things a little difficult again.

My immune system has taken a massive hit and I feel like I have influenza but there is no temperature and not much else of the normal flu like symptoms.  The brain fog is coming back, the depression is hitting hard again and then the washing machine breaks down two days ago and it needs replacing.

The asthma has got a bit worse too, but it’s the feeling that I am turning into stone or lead I can’t get over – every limb feels weighted. 

Very sleepy is not a good description really – I kind of feel like I am going into a hibernation period, if you get my drift?  But what is weird about that is the fact that I can’t seem to sleep at night.

My appetite has stayed much the same, not eating much at all, so the idea of gaining weight over Christmas is silly as I seem to be losing up to two pounds a week still or not moving on the scales at all.

I found a local gym for £8.75 a week membership, I can afford that with my personal allowance and I will be signing up for the membership around the end of January, to help me tone up – my upper arms in particular as they are the only things which don’t seem to be doing what the rest of my body is doing… losing inches and toning up.  They are a good gym to go to because they specialise in helping people who have long-term health problems or are morbidly obese, which I need because I have asthma and a couple of auto-immune problems, one of which is rheumatic arthritis.

It’s exciting to note that I have lost ninety six pounds over a year now without much effort, now let’s take it up a huge notch!  I am not that far off from my goal weight and with this gym membership I should reach my goal weight before July with any luck – at least I haven’t been on the morbidly obese scale for a while now- In fact I remember a time where I was a horrifying 56 on the BMI scale that was nearly two years ago!  No, this wasn’t the reason I was bedbound either, the bedbound came first and this kind of obesity was caused by that!

How did I manage that?

Simple!

I was a highly active person who walked an average of nine miles a day amongst lots of other exercises and physical activities, needing to eat an average of four thousand calories a day just to sustain myself or collapse – to becoming a severely ill and bedbound person literally overnight, but never readjusted my diet, until three years later when it dawned on me what the heck I was doing!

I had such spleen pain and constant chest infections for nearly eight years solid, the amount of times I was diagnosed with pneumonia too, I couldn’t move because the spleen was too swollen and I was literally advised to do nothing in case it ruptured!  NHS overstretched before covid even existed and so operating wasn’t an option given to me! 

Especially as I was eating my feelings when the depression stepped in, meaning I was over doing food on a massive scale for someone who was extremely sedentary!

It wasn’t until around three years ago that I realised when I am having an angry or a depressing day, I go to food again for comfort, I realised this is a base instinct we all have; why?  Because as animals we would take our anger and frustrations out on other animals and bite them and attack them, but as humans have learned to civilise ourselves somewhat we suppress our anger and food is the substitute for the primordial release for biting!

So when you feel depressed, sad or angry get yourself chewing gum – believe me, it works – only I find it hard to have gum these days because most of it contains soy and soy is really bad for my spleen issue.

Around four years ago was the time I had a completely free from diet, no eggs, no gluten, no lactose, no soy and a mostly paleo diet.  This helped a lot with the breathing problems and the swollen spleen, eventually I learned that I could eat almost anything without pain but there was something still off – occasionally my spleen would swell again and it took until earlier this year to find out what was doing it… mustard and soy. 

Now I am not on a free from diet anymore, but I have to avoid soy and mustard, or the spleen swells up again and my asthma has a bad day – unfortunately most of my favourite foods contain them, as I especially love mustard!  So suffering is a choice now – which I don’t choose often! 

Not a lot of people who are recently acquainted with me take me seriously about how much I understand nutrition and exercise since they’ve always known me to be this size.  But in actuality, I am really switched on, because I used to be very athletic and I can name in approximation the calorie worth and nutritional value of most foods.

But for some people they can’t understand that if you know all of this, then why did you allow yourself to get so fat?

Because if you live a certain lifestyle for too long, then you become ill where the physical aspect changes but not the food – you can see how this is easily done.  But people will be people and some people are morons and don’t use their head on this kind of stuff!

I remember a time where my doctor suggested my diet was too healthy, too low on salt, too low on fats and too low on calories, that I was blacking out three times a week on average and going into severe full bodied cramps.  Because of lack of electrolytes as I didn’t add salt to anything and I had a low fat diet which was mostly vegetable based.   I remember having to keep a food diary constantly and keep every nutrient in mind and I remember having to rush out to McDonalds at random times throughout the week to get the high fat, high salt and calorific food I needed because I didn’t have time or the wherewithal to eat a large meal, so I had to opt for big macs as a dietary supplement.  A weird contrast to my life now!

No, I do not miss it, because I didn’t enjoy having to do those things – what I do miss is the health and fitness I used to have and the energy I had as well as the body.

In the future, I am hoping to get all that back again, only this time I am going to be smarter, no big mac supplements anymore – I have a weight lifting professional friend who had the same problem, only she supplements the low salt problem not with crisps and salted fries or peanuts, like I did – but as adding rehydration salts to every bottle of water she drinks!

At the time I knew I was a protein type metabolism but I didn’t fully understand it as much as I do now and I never knew you could get really nice protein drinks to get what you need in per day.  I was literally trying to stuff down copious amounts of chicken and fish every day into my system – another thing which will change in the future.

You see, back in the good old days of when I was active, I was active alone and without a fitness network, so I was literally clueless and often had stomach ache and a bulimic reaction to the food I needed to eat.

You live, you learn.

Paul and I are still living together but we are separated, still he is trying to support me the best he can with the diet I need.  He has told me that our finances are better than we used to have as we are now being supplemented now he is retired, which means I can see the doctor more often and the diet can improve slightly.

In March my own personal finances will have doubled for me, which means I could also supplement myself too – so I should be losing the weight much faster soon.  I will get back on it all after Christmas, properly.  

Calorie, protein and nutritional monitoring that is, as well as signing up for the local gym classes!

My self-employment should be kicking off around March too, so hopefully I will earn enough to consider moving out of Paul’s by the end of summer, maybe – who know?  I can’t see me living alone to be honest, but there you go!

I don’t do New Years resolutions, so please don’t take all of this as that!

My second biggest dream right now is to rediscover my inner pride and vanity! 

When I was healthy and fit, there were a lot of people who said all I needed to do was dye my hair blond and get a Chihuahua and I’d be like Paris Hilton in my style!  I was offended, because what’s wrong with a brunette?  Though I like the idea of platinum hair! 

Though maybe they were just on about how much I love pink and fluffies? 

My first biggest ever dream I’ve had forever now, is to find someone who genuinely loves me and wants to keep me, build a family with me, push me to be the best that I can be and we motivate each other like live in life coaches!  Along with this the person has to tolerate that I can be suffocating with how I love them and hands on with them, because I am just like that!  I am like Elmira from Looney Tunes – but they also have to tolerate eccentricities, daydreams and creative pursuits as it’s all a huge part of who I am!  Please also, the person must understand I am very childish – I am overly playful and I am not too responsible really.  I am such a hedonist to be honest!

My third ever dream is not what you think it is either… nope… no, it’s not really anything to do with my stories or art – it’s having a great home and social life. 

The stories becoming movies is really a fourth dream… shock horror… I know!

I kind of kept that a secret as I kind of wore this with shame for a while – but I am starting to release the true me and I have to be honest with you as much as myself now, don’t I?

I feel bad admitting that actually.

I am still writing, don’t fret!  I am just not all that bothered in giving boring details about word count anymore, because nobody really cares enough to comment unless they are a troll who moans about how often I update word counts!

But meh – I always lacked structure anyway, I say I intend to write one novel but I end up writing a little towards twenty and so…. I am learning to become at peace with me and the way I am… so should you!

But project AD and the Easter project are the main focuses for me right now, even if I only write about twice a week on both of them – at least its progress!  You have to remember I have lots of other projects on the go too!

I know lots of people are eager to get their hands on project AD and this is why I am writing this as fast as I can, because I know there are a lot of people in waiting over it. 

I just got to get it out there anyway, because it’s a great story and I am very excited for it.  I am seeing merchandise in my head already; it will be a great new toy brand in my opinion as it is a dystopian comedy for kids.

But the Easter project is also gripping me a lot too with so many amazing ideas I am literally bursting to share them with someone but scared I’d shoot myself in the foot if I did!

So that’s what’s happening in my life right now.

Thanks for reading!

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Filed under Defining myself

Visuals & symbolism

Passions are what makes people succeed, a lot of people make presumptions about my passions because they observe things that I allow them to see, but ultimately they are wrong.

I am mostly stimulated by visuals, it is agonising to write, but I have no confidence in my art and drawings. 

People think that being a writer I write because writing is my passion – not so, what drives me to write is the prospect of the art whether in movies or paintings.  I like visuals a lot.  I often speak with Paul about how I wish I was a better artist and a faster one, so that I can draw the scenes I see in my head and then just write snippets of what those images are about.

But in my opinion my art is naff, but my writing is good.

I really want to be the artist behind my graphic novels I am working on, but I just can’t make the grade I have set for myself, for that to make me feel yes it is complete and it is wonderful… you know?

You should know that a lot of people are confident in my ability as an artist, but I am not.  Because my art is not exactly how I see it in my head; my art is too cartoon and manga like, when I want my art to reflect more realism or at least CGI quality.  Talking of which, I don’t do digital art – which would make the CGI concept actually happen, but I am trying to create CGI quality artwork manually! 

I have never learned to do digital art; I wouldn’t even know where to start other than Photoshop.

So yeah, laugh at me, because I laugh at myself regarding this too!  So why not!  Haha!

The writing is wonderful, I don’t fault it much and I am not being cocky either, I am proud of what I have written so far – but I am disappointed in my artistic ability to provide the visuals for it.

For me, writing is a painful and often stressful experience when piecing ideas together – but when I am researching and brainstorming it’s one of the best things ever! 

Writing for fifteen to twenty five minutes stretches, feels like two hours and I often feel drained after doing it, I often need exercise or something to wake me up from it! 

Doing art on the other hand is the only thing in my life where my attention span hasn’t got in the way – for some reason or another I can paint for six hours and then feel that I’ve only done it for half an hour and I always come away from the work feeling happy and energised – the same with music!

Unfortunately I can’t afford my supplies, so I can’t work on art every single day like I really want to!  I just can’t afford it!  I don’t think you really realise just how bad things are for me here, we often rely on charity support and it’s going to get worse between now and November.

Other than visual stimulus my other stimulus used to be sound – but around seven or eight years ago I caught an infection which had permanently reduced the hearing in my only functioning ear, which means there are many sounds I can no longer hear, including certain beats and instruments in my favorite songs on the radio!

I have reduced ability for scent too and poor eyesight without spectacles or contact lenses.  Quite literally I am slowly losing my senses.  Mostly due to the NHS not being able to support maintaining my treatment, which would slow this down!

This is why making a life for myself now is very important, my main goal for trying to earn money via affiliate programs, a YouTube channel, my art etc by the end of this year is to help finance me for private care; where I can have my ear rebuilt, because I need an ossicleplasty to regain hearing from one of my ears as the mastoid infection destroyed two ossicles completely. 

I also need my nose fixed because the hospital didn’t bother to repair the cartilage I broke when I broke my nose three or four years ago and it often shifts out of place and causes pain – but it’s not life threatening so they felt it can wait!  Also I have enlarged adenoids which affect my breathing and sense of smell.

Since I was a kid I wanted to do art movies based on my ideas, songs and poems, but I was lead to believe that you need to be rich to do it. 

I have made online friends through twitter recently which has taught me that it is nonsense, you don’t need to have a single penny to do it and they are showing me how.  I have asked for the course to be paused until September 7th, because I want to concentrate on it thoroughly and it is hard to do so when Paul and Henry are having screaming matches in front of me every five minutes.

It’s exciting to think I can go back to my childhood dreams.

It is also rather a strange coincidence that I am getting a lot of “inner child” symbolism and cues around me a lot lately, including with a YouTube pick a pile tarot reading, which connected the pile chooser to the arts and two decision paths whilst healing the inner child; but also, I am having a lot of bizarre dreams that I am four years old again and I am decorating my house with all the things my childhood self ever wanted, care bears, kawaii stuff – you name it, it’s so weird how this is all connecting together!

I am having a lot of dreams that I am packing boxes ready to move house and that when I get to the new house, I am unpacking things I don’t have, pretty things, things that make me happy, things that a child would want!  It’s like a prediction of abundance and joy!

I hope it is a prediction, because I really need to find my happy place, a place to play.

Happy reading everyone! 

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Filed under About my work

Price of ink and financial rants

My situation is such that when I write I will print off as I go along, because I don’t trust clouds and data saving technologies, because they have failed me numerous times before.

Recently my finances have become worse and this has affected my novel writing more than anything, now I am able to get back into novel writing since I had Covid, it has meant that because of the decline in my finances I can no longer print the seventy pages a week I used to, I can only afford to print twenty a week at most and one week in the month, nothing at all.

If it is novel writing, I will print it as I go along, because of two reasons – I do not trust data saving technologies and I find it difficult to read and edit from a screen, whether I create a blue background to read from or not.

It’s frustrating because I want to write towards four ideas immediately and I can’t write by hand anymore because my arthritis is getting bad.  Every time I write more than an A4 page of handwriting, my hand swells up to the extent I can’t properly hold the pen anymore and if I ignore it, the cramps come on.

My arthritis has meant I have had to give up my knitting hobby altogether, because not only does it exasperate the arthritis, but it has also reawakened my carpal tunnel problem too!

I miss knitting, because of the style of gloves I used to make for myself and the scarves – because the style and colours I like can’t be bought cheaply, like it can be made!

I don’t have the money to buy a knitting machine or else I would do that, I also liked making toys for children I knew, but now I have been thinking about learning felt crafts or sewing the toys instead – because for some reason or another sewing doesn’t affect me.

At the moment we have a printer that is breaking down, because it appears not to be getting a hundred pages per cartridge anymore and we can’t afford to replace the printer for at least a year.  The cost of the ink is always £15, cheap in comparison, but for us it’s three days meals.  We’re near the brink of needing food bank help again – and no Lee Anderson, I can actually cook thank you very much, in fact I cook most things from scratch and manage left overs very well so there is never food wasted here!

Amongst my cooking skills are homemade pies, cakes, soups, casseroles and pasta dishes, not to mention the fact that I have been fakeaway cooking at least ten years before it became “fashionable”!  But when your colleagues Mr Anderson insist that because I have a bus stop outside my house which is within the walking distance I can do without an asthma attack they cut my mobility money by £100 a month, which meant that I could no longer afford to manage the finances which included getting medical help to try and get me back on my feet (in order to work), because you took the money I needed to travel to the local hospital 20 miles away in another town, which costs me £20 a time and I need treatment around twice a week quite a lot of the time – which meant I had to decide to become anorexic and get treatment, or just give up fighting to get my life back and make sure my family doesn’t starve to death!  Which one would you choose? 

Because when I had to do the above we had £10 for the week for food and I often had to cancel at last minute the doctors, because I couldn’t afford to get there – because doctors don’t house visit anymore, no matter how poor you are!

Along with this, we’re still not getting a lot of free stuff sending our child to school.  We had to cancel his eleventh birthday last year and all household birthdays and have the crappiest Christmas ever just to save up to get him school uniform for his new secondary school, because you can’t get it free here and there was no way in getting second hand, we checked.  The child gets reprimanded at the school if their uniform is not complete, whether you can prove poverty or not!

We would love to give up the internet in order to get £6 a week more in our pockets to eat better and maybe get some medical attention – but that would mean my son can’t do his homework so losing the internet is not an option for us!  The irony is, they say that they are doing more and more for kids in poverty these days, honestly I don’t see it!  His meals aren’t free at school; it costs him an average of £3.50 a day for a hot meal in winter.

Don’t you dare blame the poor for poor management!

Free schools, meals in schools, the NHS was all originally created for the poorest in the community, but these days the poorest in the community are not reaping the rewards of yesteryear, it basically is slowly turning back to how it used to be.  Everything is slowly privatising again and they think we don’t see it!

I don’t normally turn my posts into political rants, but this Lee Anderson has a lot to learn and remember about the society he is trying to lead!

Funny thing is, despite being bed bound and housebound sick for around twenty weeks of the year, I could work, at the pace I can.  There is some work I could do, but the problem comes with practicality – I’ve tried slogging on looking for a job outside of the house whilst managing my sickness and nobody wants me!  No one wants someone part time three hours three days a week, even on a check out, because I have ailments which embarrass the company!  I have what appears to be a permanent streaming cold!

No one wants to work alongside someone who is sniffling all year around and then needing three weeks off four times a year because she can’t even get to the bathroom she’s so sick!

So I told the benefits OK, there are other things I can do, I can write, I can do art, I can upcycle things to sell, help advise me in how to set up my own business to do that and teach me what I need to know to run a business from home.  They won’t.

But understood only this… you said you can work?  OK we’re taking your ESA away and making you go to job search centres five days a week all year around and if you don’t turn up for three consecutive days because you are sick, we’ll pull your benefits again and it will take six weeks to reapply for benefits again, meanwhile there is no transitioning money…

So, who is going to opt for all their amenities to be switched off and starving your family for six weeks solid?  What sort of incentive is there to actually get your ass off benefits if you are sick?  What kind of incentive do they give the sick to try and work out their own ailments in order not to be a scrounger?

Because seriously, this is how it is here!

So people who call sick people on benefits scroungers, talk to your government about their crackpot schemes, and don’t go attacking us!  It’s not our fault!  Most of us would love to be independent and work and get even £5 extra a week in their pockets, because no one likes going through those humiliating interviews every year!

Paul and I had thought about going to Ireland as they take care of artists and writers on sickness benefits more than they do here in England – but lately we’ve seen the news, there are political issues cropping up – will we be welcomed in Ireland?

I know my great grandfather was Irish (from Roscommon) and I know that genetically I would be accepted with opened arms, but it’s still looking complicated…

I am very frustrated, because there are lots of things I need in order to get myself a job and there is absolutely not help at all and the money is being cut again and again, to the extent, that I haven’t impulse bought a thing since 2017 and I am losing a huge amount of weight, but can’t afford to replace my clothes as the weight falls off and I am looking ridiculous!  I have lost four dress sizes in nearly a year.

Doctor says that they don’t find that a worry because I was so large to begin with.  I was a size 28, I am now nearly a size 20, they won’t worry until I am a size 12 potentially – potentially I might be dead by then, before they investigate why!

They know I have an IBD because of my high markers, but they won’t investigate until I literally start screaming in pain at A&E, seriously, been told that, NHS is so badly stretched financially that they are now only dealing with life threatening conditions as they appear, cancer not one of them, government recently warned the UK that if you get cancer now, you are more or less fucked if you rely on NHS!

Also, I have a new cholesteatoma growing in my left ear, but my ENT specialist said his department is in so much debt right now, he will not deal with it until it is life threatening! I have been through this before when I was a teenager, I really don’t want to go there again, but I have no fucking choice, because he won’t help me! That means, if the worse comes to the worse again, I won’t be able to physically care for myself bathing wise for nearly three years again nor bend down! I will also be 100% deaf!

Anyway, I am going to close this rant up, because people are home now.

Happy reading everyone… if it was that kind of experience, which I doubt. 

P.S sorry for being an Eeyore today!

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Filed under About Me

Money free world

Money’s a problem all over the world

It’s a simple solution and not in a dream world

It used to be reality, for everyone around

But men fell in love with shiny rocks in the ground

It’s a funny old thing, love, but it does astound

We all have to have currency, the shiny tokens of gold

It’s to help everyone, or so I am told

But I just see greed and exploitation

Unfairness and hunger and lots of discrimination

It shouldn’t be like this, in a human world

We are smarter than this, our minds have been swirled

I have heard of a time where everything was free

Money is an illusion, you just can’t see

Warmth, food, water and a place to call home

Are all basic needs which everyone should own

You can’t put a price on good quality of life

So why has humanity invented this strife?

It’s a puzzle, it really is

I hope we’ll soon all work out the quiz

But suffering world over would end in a jiffy

If everyone thought that money was whiffy

Everyone all living a life they deserve

With food, warmth and water, what a learning curve

Imagine how far we could all progress if price wasn’t an issue we always had to address?

Money is a barrier in this modern world

Money needs to go now, a new system should unfurl

A system of voluntary work and good will

A system where people go to work still

But system where freedom is always a choice

A system where people in their lives could rejoice

A system with a world united where barriers should fade

A system where teamwork is always displayed

Yes there will be some who won’t do their share

But society is good at not keeping people there

People are good at motivating the herd

People who are lazy would be considered absurd

Even the sickest has their worth

But whilst there is still money, plenty resent their birth

It is a horrible fact, but it is quite true, whilst money is still around

It’s imprisoning you

Not just you but all of mankind

Money is very, very, unkind

Imagine your life without money there, what would you do?  What would be your cares?

How would you live?  Who would you help?

Please do think about this, it might self help

It will open your mind to what you can become

I wish more people thought that money was dumb

This poem was written quickly, I know it can come across a little uncomprehending but it was written at 5:45am on a cold foggy, frosty January morning and I have a bad chest infection and I tend to think about too many points at once and my brain gets scrambled at the best of times – but this is an important message I think.  One that really should be shouted as loud as climate change awareness, because I think, if money was eliminated and people worked together in teams and progressed without the need of money incentives, things like climate change would reserve rapidly – the cure for cancer found – the ability to terraform Mars would have already been done and so many other things.

I mean come on, think about it – do you really need the incentive of a few shiny coins a month to make you make this world a better place?  Do you really need the incentive of earning little fake tokens of your supposed value in the world in order to give you the life you want and deserve?  It is a belief system that you do need these tokens as an incentive to go to a job you hate, being stuck in situations you hate, that have you enslaved, slavery is never ever truly over, until the fat cats decide to change it.  Though how many fat cats are there in comparison to the slim?  I am talking money here not the supposed “obesity crisis”.  I have always struggled with the concept that I can’t do this, I can’t do that, basic little things that most people in the Western World take for granted, because of lack of money.  I have never ever had the ability to be extravagant – I can tell you what I think the most extravagant thing I have ever done financially has been outside of special occasions – bought, shock and horror a book that cost me £25 that to me is an extravagance!

I have never had the ability to afford to get my hair done at the hairdressers when I became an independent adult, living away from my parents, I cut my hair myself!

There are so many things that would change in my life, if money was removed from the social system.

I have been told several times by many doctors that they can treat my problems, it is easily treatable with basic surgery, however, it is too expensive for a struggling NHS right now, so therefore, until the illness infringes my life to the point it becomes life threatening, they will not help me.  Money, I am afraid to say, does determine how moral and humane a doctor will be and from my experience, it means that money makes them carefree, it makes them monsters; not just them, but everyone, people kill for money for fucks sake!

People need to learn that money is evil.  Yes, money saves lives and all of that too, but that is just an illusion – really many people would never have got to the extent of needing charitable donations if it weren’t for the problem that money exists in their world.  Most people’s relationships are affected by six core things; money tops it the other four things are, lying, political and sport debates, religious differences and general discrimination (racism, disability discriminate, age discrimination, fashion critics etc.) – people argue about those six core things a lot and that usually determines how well you get along with a person or not.  Money being the biggest factor because not only do families argue about the lack of it or the want of it, but people generally avoid creating relationships with new people in case they might become their victim in some way financially.  People become more uptight socially if they are wearing expensive clothing and have the latest mobile, than those who are poorer in the community towards strangers socially approaching them. 

People also judge you by your supposed wealth or lack of wealth.  I have been in situations of worse poverty than I have now and the general public; do treat you differently, either with sympathy or with contempt, especially if you are known to be unemployed due to chronic illness.  I have also been in a situation where I have been considered quite wealthy (though the money was never mine, I was dependent upon someone for a time) and again, society treated me differently.  I became more human the more I showed to others that I might actually be better off than them and I have had friends who are super rich or of celebrity status tell me that it gets worse the more you have, you become almost godlike and infallible and this particular person who told me this said that she hated it, because she just wanted to be recognised as plain old normal Sue; she adored me because I never treated her or anyone else any differently to anyone else.  I won’t tell you her whole name because I don’t like name dropping.  But I will say she is a very respected and talented British celebrity. 

Going back to complaining about the doctors again; When I have been too sick to dress properly or fuss over my hair, I get treated like a piece of fermented meat in which the doctor is even reluctant to physically examine.  I am clean, but I wear a baggy grey jumper and black leggings those days with trainers and my hair is in a messy bun. 

I go back to the same doctor a few months later after coming from a funeral in a dress suit with the same messy bun might I add and they treated me as though I had a brain and they spent ten more minutes with me than usual and examined me thoroughly.  Why the snobbery?  Same patient, same doctor, different clothes and class appearance!

I am going to number and list everything I can’t have because of my financial situation – then I am going to number and list what I would do and have in a world without money.

  1. I can’t have an operation to remove unusually large adenoids which makes me long-term unable to breathe through my nose and smell, it also causes severe post nasal drip and breathing problems, it affects my voice and larynx and I get throat infections 8 times a year and living with constantly ear infections due to Eustachian tube blockages purely because of the adenoids. Because of this, I have severe insomnia and hypersomnia, depends on how much my body will let me sleep before I literally wake choking on the entire gunk in my body, this has gone on nearly eight years now.  One of the biggest factors of why I cannot work, because it affects my breathing, my voice and my hearing levels.  I also live with vertigo because of sinus and ear pressure and almost constant sinus migraines.  Because of the amount of antibiotics I need, I have been developing antibiotic resistance and my digestive system is collapsing as it is affecting my gut flora.  As an added bonus because of my health problems, I am self-conscious going out, because I have been accused of infecting everyone, because I come across as having perpetual flu like symptoms, cough and cold.  It is especially difficult to go out since this new Chinese virus is going around.
  2. I can’t have an operation to stretch my tendons in my left hand which renders three of my fingers almost immobile due to how tight they are, despite how twisted my fingers are that when I fall down I am constantly at risk of breaking my hand.
  3. I can’t afford to get rid of old furniture and broken televisions, computers, cookers and washing machines via a skip, so have to store them in a corner in the garden and I hate that, because I am extremely house proud and as far as the neighbours are concerned by our back garden, we must be pack rats in the house, the nasty hoarding sort – but we’re not. We don’t have a car or anyone who has a car who would be willing to help for a day.
  4. I can’t afford to get my son to socialise outside of school, because I can’t buy him the rugby kit he wants and I can’t afford the membership for the marathon club. Though there is light at the end of the tunnel for his marathon club, Henry has been seen doing so well at free running events around town that we have been told as soon as he is 10yrs old (which is May 2020) he will be eligible for sponsoring and free membership!
  5. I can’t have a balanced diet which meets my needs; even the food bank struggles with someone like me – gluten and lactose intolerant with a few other allergies thrown in like certain herbs and fruit allergies. At least once a week I have to consider eating something I am intolerant to, because our budget can’t stretch for the whole week.  It’s either that or having an entire day of just meat and potatoes with hardly any or no veg and maybe some sauce.  When money was better 2yrs ago I was having an 80% paleo diet and my health bloomed, I had more good days than not.  But when the government cut that evil thing – money, I had to cut the food and my body isn’t responding well to that.
  6. I can’t afford a fish tank and supplies, a dog or some chickens.
  7. I can’t afford certain gardening tools and supplies which will help me grow more food.
  8. I can’t afford to get a gardener to help me when I am on a run of bad health. I regularly get bed bound sick where I can’t do anything for 6 to 8 weeks at a time, by that time, my garden is ruined when I get back to it, by aggressive bindweed.  The bindweed in my garden are triffids – I was ill for 9 weeks last summer and it managed to pull down and break an entire 7ft cherry tree I had put in.
  9. My husband knows I need to get out more and see the doctor a lot more than I do, but I don’t go to see him more than once a month (though it is essential) because it costs us £12 a time in transport. Therefore, we can’t afford a car and we can’t afford to pay for me to go out, so unless I can walk somewhere, I can’t go out, so I am even more isolated now.  I am also not eligible for a disability scooter for free, because my problems are not mobile, it is mostly breathing problems due to enlarged adenoids so they don’t take that seriously at all mobility.
  10. I am struggling to be able to pay for the amount of tissues and symptom relief things I need. Such as throat lozenges, vic rub, Vaseline, sanitary towels because my coughing fits have weakened my bladder severely.
  11. I have lost a lot of weight since becoming very ill, losing weight because coughing fits have made me become involuntarily bulimic and with the lack of affordable food I can eat which fits into my dietary needs, it is hard. I have lost nearly 50 pounds in the past four months and I can’t afford to get smaller clothes, so I am wearing clothes that are ridiculously big on me.  I know there is gumtree and all of that, but really it is hard to travel to pick things up and the women getting rid of their clothes don’t like the idea of a man (my husband) picking it up for me without me present, tried.
  12. I need a wig because my trichotillomania has got worse, but I have to make do without one and tolerate the whispers behind my back when out.
  13. My bed is broken and needs to be replaced because the frame broke when Henry jumped and pulled on it last summer. I can’t afford it, so we are literally trying to hold it all together with planks of wood and gorilla tape.
  14. We’ve lived with a leaky roof in our biggest bedroom for eight years now, we can’t have the roof fixed that would be 4k, heavy rains with a northerly wind causes havoc. Also our utility room roof has caved in too.
  15. Our toilet is coming away at the wall, again we’ve had to resort to gorilla tape and sealant to try and make do until we can afford to replace that too.
  16. Henry needs new clothes too, he is growing fast, but he has my problem at the moment too – having to wear clothes too big, because he is wearing his father’s hand me downs to keep him warm this winter. Thankfully Paul is a stick and is the smallest man’s size in clothing and doubly thankful that Henry is taller than most for his age. 
  17. Our sofa is broken and that needs replacing, we don’t sit downstairs anymore because of it. Also because it is winter and we had our gas fire taken out and gas supply to the fireplace removed because it was unsafe four years ago, so we have no heating in the living room except for an electric fan heater and we can’t afford to use that more than an hour a day.  We put it on whilst we eat our dinner, we don’t eat dinner in the dining room anymore because that is even colder than the living room.
  18. I can’t afford my psoriasis shampoo and wash, so have to tolerate discomfort as the NHS has refused to prescribe me again for more, told me to buy it for myself if I need it. Also they don’t fix hearing aids in our hospital anymore; I have to go to boots, so I have a malfunctioned hearing aid now, which means I am completely deaf a lot of the time. 

Surprising isn’t it?  This is England.  This is the 21st century.  Bet you didn’t know people like me still live like that?  The funniest thing is, I am one of the better off ones – one of the least poor, there are others worse than me, I have known them.  If you think my situation is shocking, honestly, you are a very sheltered person who needs to get to know others outside of your social circle a bit better.  I have known people so poor, that despite sugar tax, it is cheaper for them to get more calories into their child with a packet of haribo sweets than to cook them a veggie dinner.   I am not that poor yet and thankfully Henry has manageable allergies.  My Henry does however, live on sausages, mash, cucumber, carrots and baked beans more often than I would like, but that is the cheapest food I can get him that he is guaranteed to eat in full.  Some of the nation’s poorest can’t even afford to give their kids beans on toast, so I really can’t moan that much I suppose!

I am not poor enough in the eyes of the government to need charity help or help from the council, because we own our home outright and therefore we must fix things ourselves.  We’ve been told that if things are so bad, why not sell up and rent?  Because our money will only last five years, I would lose benefits and security in one fair swoop and we have no means to pay the rent, it’s unlikely that I will ever get well enough to have a proper job and Paul retires in three years.

In a world of no money my life would be bearable, it would be happier, it would be easier and our needs would be met; because people are more humane to those in need when they are equal to them.

Here is my no money list.

  1. Even though I am sick, in a world of no money I would have to contribute to society like everyone else.  But society would be more understanding that not everyone can cope with long hours and hard labour.  I would help places grow food or advise people on gardening for food, even on my sickest days I could sit on the internet on live chat, helping some gardening in need with various issues.
  2. I can help the world with aesthetics, by giving people my artwork to decorate their homes with, giving people my poetry and stories in books for them to enjoy. I could even get a group of actors together and we can make plays and movies based on my ideas.
  3. I would go to a workshop on my good days and help teach people how to make preserves, jams, chutneys, allergy free cakes and breads.
  4. I could do motivational talks.
  5. I can help sew and repair local peoples clothing from home, if they deliver.
  6. I can teach people about which flowers are edible, to help broaden peoples diet.
  7. I can do the occasional arts and craft workshop to help people recycle and upcycle things.
  8. I can help people learn French.
  9. I am a good massager and manicurist.
  10. I am very good with people who are suicidal or going through a dark time. I have had several people say that if it weren’t for me they wouldn’t be around anymore.  I have often thought about becoming a therapist, but in the last five years it is debatable whether or not I will be a hearing person in the future or not.  In fact, I have been told to prepare myself for becoming profoundly deaf to becoming totally deaf with a deaf dog support.  So I gave up my course as soon as I heard this.
  11. All my household problems would be solved, no dangerous stuff, more respect from neighbours and warm living room that is comfortable.
  12. I would be able to live the diet that is optimal for me as an individual.
  13. My operations would have been done before my health got this far and I would probably be able to do more things than what I listed above.
  14. We would have an electric car.
  15. We would have a dog, a full fish tank and some chickens in the garden.
  16. We would have tools for the garden and help in the garden.
  17. I would be able to wear appropriate clothes and so would Henry.
  18. We would have a safe bed.
  19. I would probably need to apply for a house extension so I could have an extra room to use as a library.
  20. I would be able to get out more.
  21. I would shave my hair off entirely and get a wig, so I learn to stop pulling.
  22. I’d go to the cinema once a week.
  23. We’d go for a pub family meal on Sundays like we used to.
  24. I’d take Henry to the big televised rugby matches.
  25. I’d adopt four kids and concentrate on getting my body healthier, rather than push my body to get that second child I want.
  26. We’d go out on a big family day out once a month at least – a zoo, a museum, a steam train ride, a bowling day out etc.
  27. Because a world without money would be more cooperative and free, I would be free to lend my services to certain people. I would be able to assist the local elderly, cook for them, visit them to keep them socialising, take them out, play games with the playful ones, and do the same for the severely disabled. 

It is all just hearsay I know.  I am down to earth enough to realise that I may still be struggling day to day with my own needs, like I am today.  But even in a world of no money, I could manage to help society from home, in my bed with online talks.  I could go out for one half day a week doing any of those things above and still be a worthy member of society who does her bit.  Basically, I would have a better life than I do now.  But because of my current needs, ESA will not tolerate someone who can do half a day of something, without pulling the carpet from under them and saying “well in that case you can work, we will take your money from you henceforth”.  They don’t care that my illness is such that I can go out for one half day a week, but I will be bedbound for four days after it and so therefore will not function around my own home – that to them, doesn’t matter.  What matters is getting me off benefits at any cost!

I am saying, in a world of no money, I can volunteer to be present outside of the home every 4 to 7days, if society tolerates someone who has a permanent streaming nose and allergies when she does it – I often feel that people recoil from me a lot when I am out about and this leads to me thinking things such as “Well why not just euthanize me now, then?”.

I burden too many people with my presence, they make it all too obvious and people who work in benefits don’t help matters!

Money is evil, it makes us heartless.

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My lifestyle for food, skin and health (or what little there is of it)

A few people will be astounded to learn I am nearly forty as a few people believe that they think I am in my mid-twenties, I don’t look my age apparently.   Have been told by a lot of people that they believe me to be incredibly young, three or four years ago were the last time I tried to buy alcohol and was asked for ID because the seller felt I was seventeen, which wowed me.  Maybe he just fancied me?  But I have had straight female friends who are much younger than me have their mouths drop open when they realise I am fifteen years their senior.

I believe it has something to do with how I treat my skin and what I like to eat and drink.  I took Honour Blackman’s advice when she was on a show when I was around eleven years of age that she has never washed her face, she uses only moisturiser with some cotton which she dabs and never rubs.  I do indeed wash my face but never put soap on it ever, I wash with plain filtered water, hot first then ice cold, I do use a moisturiser about once a week which is Nivea crème, I use this crème on my face, elbows and knees, my elbows and knees are as smooth as a child’s.  I drink cranberry or raspberry juice twice a day, I drink a lot of water with very, very watered down fruit juice concentrates, I have never really been one for tea or coffee, I never grew up.  I drink around six pints of fluids a day if I am not having a bad day, on bad days my body can’t keep fluids down.  I drink green tea about three times a week and a hot honey and lemon most days.  I love berries and eat them daily, prunes, raisins, dates when I have sugar cravings.  Chicken and fish being my main meats with lamb once a week if I can afford it; lately lamb is a once a month treat.  I love pickles and sauerkraut and I aim to eat a whole cup full of green leafy vegetables per day.  My diet has to be gluten and lactose free because of intolerances which make my illnesses much worse, two years ago I was hospitalised with bronchitis only to find out that with other symptoms I had, I had severe intolerances and my health has improved vastly since shifting onto a free from diet.  I consider my diet to be a semi-paleo, Mediterranean and Asian diet these days.  I say semi-paleo because I like beans and pulses and I will eat gluten free rice, pasta, oats and potatoes, hard-core paleo dieters will slap my wrists for those.  Despite all of this I am very overweight still, though slowly losing the weight since the shift.  I am around forty pounds lighter than I was before the lifestyle change.

I will admit that temptations do set in and I often sneak in gluten and lactose into my diet with severe ramifications which affect me for three to five days after eating them, I have done this around once a month since the change.  I am getting tired of this and getting to the extent that if I don’t have enough fruit and vegetables in my day I actually feel really ill, so it has got to the extent that I need to eat around five pieces of vegetables and a fruit a day in order to feel relatively ok in comparison.  I am happy recently that I have found free from Paninis, hot dog rolls, burger buns, naans and tortillas which don’t take like cardboard, so the idea of becoming totally gluten free permanently is more doable.  I have found lactose free whipped cream and single cream, which also helps and the other day on TV I learned that Hotel Chocolat does lactose free options which is exciting, because I love truffles, which they do lactose free – I generally don’t like chocolate much though because it clogs my ears up sometimes, so chocolate is a once a month treat and it is usually only about three or four mouthfuls. 

I am impossible to cater for food wise because of my allergies.  I am intolerant to gluten and lactose, allergic to pineapple, flax/linseeds, camomile, thyme, shouldn’t really eat eggs as it gives me wind, should avoid binging on chocolate due to ear blockages, there is an unknown spice at the local take away which also causes my mouth to burn and swell, never knew what that was!  Beef can affect me in a bad way if I eat it more than once a week; I eat starchy foods but not too much because that affects my body too.  Certain candies can make me extremely hyperactive mentally and sometimes physically which can be dangerous when ill.  I am really difficult to cater for since discovering these allergies and reactions.  When explaining to a friend at Henry’s school a few months ago called Dee, she shook her head looked at me and asked “what do you eat”?  At the time I was good for seven months solid, without breaking my free from diet at all and I had 9 weeks of what I call, normal health, then I caught a cold and thought fuck it all!  I never did get that streak back.  Purely because the government cut our benefits by £200 a month, so the above diet I had is no longer possible!  At the time it was very strict, I only had gluten free products once a week to satisfy beans on toast cravings or ham and pickle sandwich cravings.  I still ate eggs a lot though, but it was a windy time.  I had health, but I stank, but that was OK for me, unless I was on a bumpy ride on a bus.  I ate fish, poultry and lamb, salads and vegetables, I made sauerkraut three times a week, I had lactose free cheese and omelettes with samphire and spinach.  It was tasty, but boring and predictive and being on benefits I can’t afford to eat as regularly as a normal person should.  I can’t afford it on a strict paleo diet, whether it benefits my health or not, I do not have the money for three prime optimum meals per day.  My doctor is concerned with the lack of certain vitamins my body isn’t having because of food cost.  In fact so much so, we’ve recently become members of a food bank, referred by my son’s young carers group.  They’ve recommended the only food I should buy is the food I need, the food for my son and Paul should come from the food bank.  It is a sorry arrangement, but something we can’t refuse at this stage. 

That’s my situation. 

It baffles me that I eat all these fruits and veg with a piece of meat or fish a day and yet I am still not getting enough nutrients.  I can’t afford nuts, I can’t afford to have meat more than once a day, I can’t afford, seeds, I can’t afford red meat, or canned fruit, or exotic fruits which are highest in vitamins.  I can’t afford avocados, or shrimps etc. 

What I can afford and have almost always in my kitchen available to me are chicken legs, cans of tuna, sweet potatoes, potatoes, gluten free pasta, gluten free rice, gluten free porridge, prunes, dates, apples, bananas, grapes, oranges, spinach, kale, carrots, peas, onions, ham for sandwiches, gluten free bread, sweet pickle (not entirely allergy free), mayonnaise, baked beans, parsnips and sweetcorn, swede and cod fillet.  That’s all we can afford for me.

I have eaten this diet and only this diet with the occasional food from Paul and Henry, such as crisps, biscuits and fish fingers (not allergen free) for about a year and it is sending me insane.

I could afford better food if my doctors were able to get a grip on many of my symptoms.  My illnesses dictate that I need tissues for my sinus problem and I need an average of 12 to 20 boxes a week just for the sinus and chest problem!  That is how much mucus I produce in a week, 20 boxes worth; I get no extra financial support for this.  I also need regular sprays for sore throat, Vaseline because my nose gets sore and dry, hay fever tablets because of my other allergies; I need approximately 12 to 20 painkillers a week.  I was told by my consultant that I need to have Canestan ear drops (as they do them as ear drops too) as often as possible but they said they won’t pay for more than a certain amount but you can buy them over the counter at £5 a week on average.  I need to have these drops all the time and I am not overusing them apparently, despite my fears.  Because my ears seem to have a permanent inner skin infection, which in layman’s terms means I have a permanent ear infection, try living with that!  Because of my digestive problems I was told to bulk up on specific vitamin pills which the NHS cannot provide, so again, I need vitamin C, calcium, for some reason kelp and zinc primarily and have been recommended to double doses per day.  I need a psoriasis medicated specific shampoo and body wash, again unavailable on the NHS and this costs me £12 a fortnight for the strength I need.

So when you look at all that, you can see how I can easily come into debt and cannot afford a better diet, whilst being on benefits.

If doctors got a handle on my symptoms I would instantly become £45 a week richer.  I was told recently that our local NHS is struggling to the extent they no longer do hearing aid repairs, so I was told to go to boots, so I guess I will be paying for that too?

Ho hum, there you go.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Ovipets and health update

Today has been very exciting on Ovipets.com because yesterday they bought out a new species, a bear species the ursa!
I have wanted a bear, dinosaur, crocodile and cow species for a long time. I am so glad it’s the bear.
Unlike most times when they’ve bought out new species, I was actually active on ovipets.com and not on vacation mode and not too sick to play and I actually had 800 credits to generate the new pets, finally and I was one of the first to generate the ursa, in the first 20! So I made 16 pairs, not for a project, because I don’t approve of these rule infested projects, but to have a pair of every available colour except for grey.
Because I am ill a lot, on the days where I am not too bad, I love playing ovipets.com and flight rising as well as online scrabble to pass the time away, because I am often too sick to do anything else than sit down, especially with the dizzy spells I get a lot of when infections are starting up again.
It is games that inspire me to write too, some games give me a sense of mixing up animals to create new species for stories that have never been done before – almost chimera like beings. Others have already been done, like the other day I accidentally went into the fish tab to breed my stallion – oops, but actually in Scottish mythology that exists! The Kelpie, that’s like a mermaid for horses!
Playing ovipets.com in particular has also helped me understand art and colour mixing. I am very popular with people who play ovipets, for the bright colours and rare genes. I rarely sell anything for credits because it’s hard to get your money back once you’ve bought credits. So really, Ovipets is just a hobby for me. I am very generous, but in regards to these new species that come out once in a while, I am not that generous. I don’t randomly give up new species to an unpaid just to be nice. I generate lots and lots of the new species to breed, so in a few days’ time I can then give them out to the AC (Adoption Centre) for the unpaid.
Unlike some members of ovipets too, I don’t ditch the so-called mud coloured pets, because to me, I can work with them, did you know that when you choose the right colours to breed with, you can make a brown pets offspring, orange or even pink? Be more adventurous and don’t ditch the muds and find out for yourselves!
Talking of mud, I am a little disconcerted with the egg of the bear in this game – it’s a beehive shape and when you have black and red it looks bad enough, but two various shades of brown to get that stereotypical grizzly look, looks like something you find on the street by a lazy dog walker!
I mass breed on ovipets.com and I can breed over 300 pets on an average day. My main chosen species are, Equus, Lepus, Lotor, and piscium. I no longer breed Cebidae or Cetacean, because I simply don’t like them on this game. There is nothing against monkeys and sea animals in real life however.
Because I breed a lot, Paul helps me feed the pets whilst we talk in the evenings. He can be there for two hours just clicking feed for me, primarily because our internet is slow lately. But, whereas he would like to do this every day to cut down time, he can only do this really every 3 to 4 days.
He encourages me to breed whatever I want and how much I want, because he sees that lately, it’s the only thing that really perks me up, when they hatch and they are beautiful it makes me happy. Something that is rare lately.
I used to be a very positive and happy person, but four years of constant pain gets to you and wears you down. I didn’t realise that I had a cholesteatoma in both ears until our last consultant discussion; I could be heading towards surgery very soon, though how soon I don’t know. I had a mastoidectomy when I was 17, I can’t have it again in the right ear and because it was completely removed, apparently that’s almost an unheard of practise.
If I end up having the same operation on the left side, I will be unable to bend over and properly care for myself for up to two years, I remember from last time. I have no idea how Paul will cope around the house then, because I will be unable to do the smallest of things for the first year in particular.
I know a lot of people say they’ve had this surgery and I’ve exaggerated, but my consultant has told me that my condition for some unknown reason is the worst his seen in his 30yr career. This new consultant is amazed that I’ve had a total mastoid removal and isn’t too happy to allow that to happen again. He wants to give me a bone-anchored hearing aid and sew the ears up to prevent infections, but personally I don’t see how that’s going to help.
He is also confused about why my mum never allowed me to have my adenoids removed when I had my tonsils out aged 5. I am not too thrilled when he told me that he will remove the cholesteatoma and adenoids at the same time if surgery becomes the option. Which he did hint will more than likely be the case, I won’t know until approximately 8 weeks from now.
Anyway, I hope that I won’t have a bad recovery like I did before, whatever happens.
Since I went back to ovipets last month, I’ve neglected my flight rising a bit. I am finding flight rising boring lately.

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morning pages and progress

I have been feeling a little better about writing since I have been writing more often my morning pages on a website known as 750words.com

I had written 24 days in a row before becoming seriously ill with such a bad ear infection that I needed to go to A+E and was sent directly to the ENT department in Coventry and was given ear wicks; I was told that I came very close to being admitted in hospital and having to have antibiotics intravenously, the infection came on very quickly, I’ve never known an infection to react to my body so fast and it even went into my jaw and prevented me from eating solids for days.

Anyway, after 10 days of antibiotics I got back into my morning pages again, this time I have been doing them 7 days, I am confident that the inner writer/artist has reawaken, the desire to be creative has come back.  This is amazing because for the last three years I had thought I would never write much again, I lost interest in it, I didn’t enjoy it anymore, but now I look forward to waking up just so I can write.

Today I have written over 600 words without doing my morning pages to awaken me into the mood to write, which for me is a huge progress.

I have decided to take note of my previous post here and to do at least one post each day, even if it has nothing to do with a poem or story, just a little update about my life.  Because it is my duty to feed my fans the stuff they love.

I have chosen to start as from tomorrow, posting about my thoughts on various mythological creatures.  There will be at least one post per day henceforth, however, there may be more than one post per day, depends on what happens, but ultimately there will be at least one a day.

Thank you for staying loyal to my blog. 

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time to start living

It is not unknown that I have a lot of health problems, in fact more often than not my ailments these days make me bed-bound with bacterial and viral infections and my left eardrum is collapsing, which could leave me totally deaf if it weren’t for the technology of hearing aids.
However, I had decided last week to restart doing my blog regularly and concentrating hard on writing, art and photography in general because I am tired of being dependent upon an insecure government; I am also bored of not being able to work away from home or volunteer anymore, but I can’t help that as I have auto-immune-inner-ear-disease aka AIIED, which means I get about a 2 to 5 days of normal health a month, not conducive to the workplace.
I will have several new sections coming up soon on this blog about Cosmic Ordering, because I am using this to turn my life around; I’ve always been a bit of a Pollyanna which is one of the main reasons I had a lot of problems as a child, so I just need to refocus a bit. I am especially interested in Cosmic Ordering and the methods behind Ho’Oponoopono because I have been told that it is likely I will need more surgery on my ear in the future, my roof is leaking, my health is getting ridiculously bad lately, I’m poor as a church mouse and… well, basically enough is enough and it’s time for a change.
I had another small pause to my blog from my previous post because I went down with a big bang with what my GP described as severe pharyngitis (diagnosed on the 3rd February) and was told that if this didn’t show signs of getting better in 48 hours I could find myself in hospital receiving treatment intravenously; scary, I am still ill as I am typing this – but not as bad as I was and I am thankful things are getting better.

 

I am trying my best to stick to my plans of the Ho’Oponoopono chant and the Cosmic Ordering guides from the Mohrs and various other people – especially my very good friend Richard Gentle who has written lots of material on the subject of Cosmic Ordering, negative miracles and crystal wand healing; in many respects it was he, who gave me the confidence to start doing this and he did this a few years ago, unfortunately my life back then was full of negative people who always undid whatever I tried to do to improve myself, that is no longer the case, in fact, quite the opposite.
One of the biggest steps to changing your life to a more positive stance and being your true self, is to leave the people who do not accept you, whether they are family or not.
So I will finish now with this post, to let you know I intend to get busy and post more often.
Thank you for reading
xxx

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